Experiencing symptoms of myasthenia gravis for the first time can be frightening. Muscle weakness and fatigue characterise other neuromuscular disorders as well and not knowing which one you’re dealing with can make you feel even more powerless and lost. It doesn’t help that many people go undiagnosed for years precisely because the early symptoms of MG can be misleading. Muscle…
December is supposed to be the most wonderful time of the year but for people who live with myasthenia gravis, it may not feel so. It’s hard to be in a jolly mood when you’re experiencing a flare of symptoms like muscle weakness and fatigue and the typical holiday activities i.e. wrapping presents and even having your favourite meal become…
If you’ve been following the blog you know that we mainly address patients here, yet once in a while, there will be a post that’s aimed at their loved ones and caregivers. Friends and family are important components in the treatment of any chronic illness - all you need is love, as the lyrics go. Well, not entirely. You also…
Fatigue is arguably one of the worst symptoms of myasthenia gravis. Together with muscle weakness, fatigue can lead to a significant decline in the quality of life. It may sound familiar: sleepiness even after a full night’s rest, feeling too tired to participate in favourite activities, get involved in the community or do your job even when you feel internally…
Recently, under one of our Facebook posts, there was a discussion about the importance of vitamin D in autoimmune diseases and the link between vitamin D deficiency and autoimmunity. We at FindMeCure welcome your thoughts and suggestions because opening up a dialogue with patient communities is important to us. Your experiences, observations, insights and perspective are valuable and we love…
We already know that our mental state can have a huge impact on our physical wellbeing. Stress can amplify the sensation of pain, it can increase inflammation and push us towards unhealthy coping mechanisms that are detrimental to our physical condition (like smoking) or our general wellness (like disordered eating). We know that there can be a physical manifestation of…
